A shared journey: insights from the Banksia Younger Onset Dementia Support Group

11 August 2015

By Seuwandi Wickramasinghe, Ashley Carr and Helen Kimberley, 2015

Study of our pilot program that supports people with younger onset dementia.


The study found that the participants valued being involved in choosing and organising activities that they find meaningful and enjoyable, and sharing the experience with others.

The Banksia Younger Onset Dementia (YOD) Support Group in Frankston, Victoria, was created by the Brotherhood of St Laurence in 2013 in response to an identified gap in services. Funded through the HACC (Home and Community Care) Growth Fund, the pilot project recognises that the social and personal needs of younger people with dementia and their carers are distinct from their older counterparts due to their stage in life when dementia is diagnosed.

Moving away from conventional ‘professional’ ‘service provision’, the YOD Support Group recognises members as individuals with expert knowledge stemming from their personal experiences of dementia. It assists them to initiate, plan and engage in activities, maintain social links and raise awareness of YOD in the community.

Download summary » (6 pages, PDF, 196 KB)

Download full report » (38 pages, PDF, 358 KB)

The Brotherhood of St Laurence (BSL) acknowledges and understands its obligations under the UN Convention on the Rights of the Child and recognises that all children and young people have the right to be treated with respect and care, and to be safe from all forms of abuse. BSL has a zero tolerance towards child abuse.
Read the official statement signed by the Executive Director.

The Brotherhood recognises the harm that family violence causes and that freedom from violence is a basic human right.
We will support our staff, volunteers, clients and the community if they experience violence.

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The Brotherhood of St Laurence acknowledges and recognises the Traditional Owners of the land upon which we live and work, and we pay our respects to their Elders both past and present.

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